Over the last couple of months I’ve been keeping my emotional self on a tight leash. As November arrived, my father, aged 92, was coming to the end of a long journey of ill health and decline. We all expected that this Christmas would be his last, and we prepared to make it a special one for him.
The universe had other plans, and dad was rushed into hospital in late November with severe respiratory problems. He remained there for several weeks as doctors and nurses fought to keep him alive, draining his chest, rebalancing meds, pumping him with diuretics, draining his chest again - all to no avail. He passed away on the 22nd December.
The weeks spent visiting dad in hospital were emotionally draining, not just because he was approaching his end of life but because of the invasive, uncomfortable and often distressing attempts made to keep him alive. For what? An extra few days or weeks in extreme pain and discomfort? He was distraught, and made it clear that he was ready to die and wanted to be cared for palliatively in peace and quiet. I argued his case but for the medical team, extending his life and getting him back home trumped his pain, distress and anguish, even though his life was drawing to an end anyway.
Dad did not come home. I knew he wouldn’t, couldn’t. At last the palliative care team were called and they immediately recognised that he needed looking after with compassion as his life ended and he was moved to a hospice where he peacefully passed away.
Through all of this I was, at the same time: trying to be calm and controlled as I battled a hospital system entirely focussed on preservation and out of sync with the natural process of dying; a carer, offering dad daily comfort and emotional support; a distressed daughter filled with anticipatory grief; a professional, still at work and going through the motions of running an arts charity. And when the hospice welcomed me with open arms and held a space for me to talk, rest, breathe and spend quiet time with dad, I literally gave myself to them and allowed them to look after me like a small child. I was a wife too, but that role was at the bottom of the list, there was just no room for it.
That’s a lot of people inside one head.
When dad died, the first tears had barely dried when the admin started piling in - confirmation of cause of death, registration of death, needing to inform so many people, organisations, agencies (thank goodness for Tell Us Once), making funeral arrangements, and of course, probate. I threw myself into all of this with gusto. It was a proper project with goals, an endpoint and lots of paperwork to wade through.
I did not take time to breathe, think, process, grieve.
At the end of the year, the 52 Frames challenge was to redo a previous challenge of our own choice. I chose the prompt ‘Emotion’. Consciously I chose it because the first time around I’d ducked the personal and taken a photograph of the moody sea and this time I wanted to be more direct. Unconsciously I think it was more about using the camera as a route into my own turbulent feelings of grief. Thinking creatively opened doors that I’d kept shut and tapped into my deepest self, the one I was keeping on a leash because I was afraid of the power of my emotional response to dad’s death.
My photograph for the challenge was of an old friend, Julia. Dad had called her his ‘second daughter’. The image was of her sitting at her piano playing a tune called Try to Remember. Nana Mouskouri, dad’s muse, had sung it and Julia had learned it in his honour. Emotion filled that room as much as the music and I wanted to hold it, capture it, and stay connected to it. It’s not a perfect photograph but it captured a moment and it means a lot to me.
The next 52 Frames Challenge, the first of 2023, was ‘Self-Portrait’. That really floored me. The more I thought about it, the more I realised that I didn’t really know which version of myself to show, or even which to be.. I realised for the first time how I’d been shifting from role to role, keeping each ‘me’ in separate compartments because collectively my shape-shifting personas were overwhelming, powered by all the messy, sorrowful, angry, overburdened aspects of an only child caring for and untethering from their remaining parent, while keeping so many other plates spinning. I realised too that grief had touched each persona differently, triggering different behaviours depending on which hat I was wearing. I used International Camera Movement to represent this schizophrenic feeling and looking at it now it seems nightmarish and disorienting, but that’s exactly how it was only a few weeks ago. Taking a self portrait to share with my peers had encouraged me to really look at myself and once again the creative process had tapped into emotions I’d be unable or unwilling to acknowledge.
In my work we’ve done a lot of research on the power of taking part in group creative activities, how the process of enquiry, of making, learning and sharing encourages empathy, builds connections, increases agency, shifts perceptions and behaviours. I think creativity can work that way even when you’re just working with yourself. My husband says writing is his oxygen and without it he can’t breathe. For me picking up the camera was like therapy. Looking through the lens I found a clearer view. It opened my mind and my thoughts, allowing memories and emotions to flood out and I leaned into them, letting photography peel away the layers.
I’ve sat with the feelings, let them wash over me, even drown me and then move on. My photo mojo is a bit suppressed after that surge, it’s light has gone out and I’m waiting for the battery to recharge - which I know it will, soon, because as my husband says, it’s oxygen.
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